Friends

The TAPS Support Foundation logo
Contact person:
Stephanie Ernst
Category:
EURORDIS Members
Contact
Event in Netherlands
Zeldzameziektendag
Rare disease day in
29 Feb 2020 The Hague
Spinning for less pressure
SOSNL is a Dutch foundation
29 Feb 2020 Hoofddorp
Rare is many, grow in the
Stichting SpierKracht
15 Jan 2021 - 01 Mar 2021 Bilthoven
image
Mosaic of PID's
In order to create
09 Feb 2021 - 27 Feb 2021
Awareness for medical issues
Bijnierpatienten in
28 Feb 2021 - 31 Dec 2021 The Netherlands...
Netherlands

The TAPS Support Foundation

For us, Rare Disease Day means that we can share our stories and be visible. TAPS is a rare disease affecting around 5% of monochorionic twins, and we'll be sharing information and updates all month about Twin Anemia Polycythemia Sequence


http://www.tapssupport.com

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Raise and join hands
  • TAPS is a rare disease affecting 5% of monochorionic twins.  Stephanie, Emilie and Mathilde Ernst are just a few of the TAPS Support Foundation members.