Friends

Action Duchenne logo
Contact person:
Peter Baldwin
Category:
Other Patient Groups
Contact
Event in United Kingdom
image
Video of people saying
Video of people saying
24 Oct 2018 - 24 Oct 2019 Wordwide
Rare Film Festival
Rare Disease UK is
10 Feb 2020 London
image
Drug Repurposing for Rare
Findacure's Drug Repurposing
24 Feb 2020 London
Rare Disease Day 2020-
The Office for Rare
24 Feb 2020 - 28 Feb 2020 Glasgow
Rare Disease Day Senedd
Join Rare Disease UK
25 Feb 2020 Cardiff
Rare Disease Day at Royal
Royal Holloway celebrated
26 Feb 2020 Egham
Rare Disease Day Westminster
Date: Wednesday 26
26 Feb 2020 London
Adenomyosis Awareness 2020
This year for the worldwide
26 Feb 2020 London & Worldwide
Joint North/South Rare
Let's "Reframe Rare"!
28 Feb 2020 Belfast
image
Show your rare!
Hands on activities
28 Feb 2020 London
JOINT NORTH SOUTH RARE
Let's "Reframe Rare"!
28 Feb 2020 Belfast
image
Mission: Possible
Please join us for
29 Feb 2020 London
image
ADSHG Twitter Chat - Parents
We hope you'll be able
29 Feb 2020 Twitter
image
Genetics Matters
Genetics Matters is
29 Feb 2020 Newcastle Upon Tyne
image
RARE/D LIVE
THE WHITWORTH GROUPThe
29 Feb 2020 Manchester
Red, Scarlet, Crimson The
The Advocacy of Neuroacanthocytosis
29 Feb 2020 London
image
Cambridge Rare Disease
Cambridge Rare Disease
29 Feb 2020 Cambridge
Rare Disease Day Holyrood
Join Rare Disease UK
04 Mar 2020 Edinburgh
Rare Disease Day at Royal
On Friday 26 February
26 Feb 2021
United Kingdom

Action Duchenne

We will raise awareness for people living with a rare disease through Social Media and events


http://www.actionduchenne.org

Share this
Raise and join hands
  • Life beyond limits
See all the photos
Other friends in United Kingdom:
Download materials
News
How sport can be a valuable therapy for rare diseases
How sport can be a valuable therapy for rare diseases
For Charlotte from the UK, who has a rare genetic disorder called Osteogenesis imperfecta, sport has been a really important part of her coping mechanism. Her condition means her bones are brittle, pu...
22 Dec 2020
Meet our heroes!
Meet our heroes!
6 continents, 6 portraits, 6 heroes, 6 lives. Rare Disease Day shines a light on the global and diverse community of over 300 million people - men, women and children, adolescents, young-adults, adult...
28 Nov 2020
Read all news