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Contact person:
Peter Baldwin
Category:
Other Patient Groups
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Event in United Kingdom
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Video of people saying
Video of people saying
24 Oct 2018 - 24 Oct 2019 Wordwide
Rare Film Festival
Rare Disease UK is
10 Feb 2020 London
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Drug Repurposing for Rare
Findacure's Drug Repurposing
24 Feb 2020 London
Rare Disease Day 2020-
The Office for Rare
24 Feb 2020 - 28 Feb 2020 Glasgow
Rare Disease Day Senedd
Join Rare Disease UK
25 Feb 2020 Cardiff
Rare Disease Day at Royal
Royal Holloway celebrated
26 Feb 2020 Egham
Adenomyosis Awareness 2020
This year for the worldwide
26 Feb 2020 London & Worldwide
Rare Disease Day Westminster
Date: Wednesday 26
26 Feb 2020 London
Joint North/South Rare
Let's "Reframe Rare"!
28 Feb 2020 Belfast
JOINT NORTH SOUTH RARE
Let's "Reframe Rare"!
28 Feb 2020 Belfast
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Show your rare!
Hands on activities
28 Feb 2020 London
Red, Scarlet, Crimson The
The Advocacy of Neuroacanthocytosis
29 Feb 2020 London
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Mission: Possible
Please join us for
29 Feb 2020 London
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Cambridge Rare Disease
Cambridge Rare Disease
29 Feb 2020 Cambridge
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RARE/D LIVE
THE WHITWORTH GROUPThe
29 Feb 2020 Manchester
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Genetics Matters
Genetics Matters is
29 Feb 2020 Newcastle Upon Tyne
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ADSHG Twitter Chat - Parents
We hope you'll be able
29 Feb 2020 Twitter
Rare Disease Day Holyrood
Join Rare Disease UK
04 Mar 2020 Edinburgh
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Show your colours Share
We share our colours,
03 Feb 2021 - 28 Feb 2021
World of Rare Disease Pop
World of Rare Disease
09 Feb 2021 - 11 Feb 2021 Northern Ireland
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Sheffield Autism Research
Sheffield Autism Research
21 Feb 2021 - 28 Feb 2021 Sheffield
Virtual Parliamentary Event
Virtual Parliamentary
24 Feb 2021 Online
Colour Flair for Rare
COLOUR FLAIR FOR RARERare
24 Feb 2021 - 27 Mar 2021 Northern Ireland
Rare Disease Day at Royal
On Friday 26 February
26 Feb 2021
Webinar: Lesson from 2020;
Join us for a Rare
26 Feb 2021 Virtual
Light Up for Rare
Thank you councillor
28 Feb 2021 Carmarthenshire
Light up at Tower 42
We will light the top
28 Feb 2021 London
Rare Disease Day Virtual
Virtual Musical RariTea
28 Feb 2021 Northern Ireland
Belfast City Hall Light
Northern Ireland Rare
28 Feb 2021 Northern Ireland
Rare Disease Day 2021 -
The Adenomyosis Advice
28 Feb 2021 UK
United Kingdom's Rare Disease
The following locations/landmarks
28 Feb 2021
Stargardt’s Connected Community
On Rare Disease Day
28 Feb 2021 Virtual
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Virtual comedy night for
To coincide with Rare
28 Feb 2021
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RARE/D LIVE 2021 - RARE
RARE CANCER – how rare
28 Feb 2021
WHAT DOES RARE MEAN TO
What does RARE mean
28 Feb 2021
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Rare Moms Talk Rare Diseases
Rare diseases are not
28 Feb 2021
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Virtual "Rare Coffee &
Our Rare AHC Event:A
28 Feb 2021 - 07 Mar 2021 Virtual All over...
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We Are Pituitary Virtual
We are excited to announce
01 Mar 2021 - 06 Mar 2021
IGMM Shining a light on
On 2 March, people
02 Mar 2021 Edinburgh
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Wellbeing for those affected
Coping Through Covid
06 Mar 2021 LONDON
United Kingdom

Action Duchenne

We will raise awareness for people living with a rare disease through Social Media and events


http://www.actionduchenne.org

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News
Many, Strong, Proud: Connecting Rare Disease Day Across Continents
Many, Strong, Proud: Connecting Rare Disease Day Across Continents
The rare disease community and its supporters come together to share the message: Rare is many. Rare is strong. Rare is proud!Today, 28 February, is Rare Disease Day; the day dedicated to raising awar...
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Out Now! Rare Disease Day 2021 video is here!
Out Now! Rare Disease Day 2021 video is here!
The official Rare Disease Day 2021 video launches today and is already available in 36 languages, kicking off the international patient-led movement that puts rare diseases in the spotlight.6 continen...
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