Friends

World Without GNE Myopathy (WWGM) logo
Contact person:
Shubhraa Sinha
Category:
Other Patient Groups
Contact
Event in India
RF7 2020 Pune
16 Feb 2020 Pune
RACEFOR7 2020 NAGPUR
Race for 7 is a large-scale
23 Feb 2020 Nagpur
RACEFOR7 2020 BENGALURU
Race for 7 is a large-scale
23 Feb 2020 BENGALURU
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Raising the Awareness:
Raising the Awareness:
28 Feb 2020 Hyderabad
Racefor7 Davangere
Race for 7 is a large-scale
29 Feb 2020 Davangere
Racefor7 2020 MUMBAI
Race for 7 is a large-scale
29 Feb 2020 Mumbai
Racefor7 2020 KOCHI
Race for 7 is a large-scale
01 Mar 2020 Kochi
Racefor7 2020 CHENNAI
Race for 7 is a large-scale
01 Mar 2020 Chennai
Racefor7 2020 Ahmedabad
Race for 7 is a large-scale
01 Mar 2020 Ahmedabad
RACEFOR7 2020 MYSURU
Race for 7 is a large-scale
08 Mar 2020 Mysuru, Karnataka
Racefor7 2020 COIMBATORE
Race for 7 is a large-scale
08 Mar 2020 Coimbatore, Tamilnadu
India

World Without GNE Myopathy (WWGM)

Building awareness around GNE Myopathy, a rare genetic muscle disorder that leaves the ones affected with progressive weakness. Eventually making them wheelchair bound in 10 to 20 years. There is currently no cure for it. WWGM is focused relentlessly to finding a cure, where no one else has their attention on such a debilitating disorder. This Rare Disease Day, our spotlight is on the organization and the work it is doing towards the ones neglected .


http://gne-myopathy.org/

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