World Without GNE Myopathy (WWGM)
Building awareness around GNE Myopathy, a rare genetic muscle disorder that leaves the ones affected with progressive weakness. Eventually making them wheelchair bound in 10 to 20 years. There is currently no cure for it. WWGM is focused relentlessly to finding a cure, where no one else has their attention on such a debilitating disorder. This Rare Disease Day, our spotlight is on the organization and the work it is doing towards the ones neglected .