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Manika Kreka
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Event in Albania
Albania Rare Disease Day
Information about rare
29 Feb 2020
Albania

KIDS Albania

KIDS Albania in support of Rare Disease Day! KIDS Albania is the first Young Persons' Advisory Group in Albania promoted by Consorzio per Valutazioni Biologiche e Farmacologiche (Albanian Branch Office) in collaboration with the TEDDY European Network of Excellence for Paediatric Clinical Research and the University Hospital Center 'Mother Teresa' Tirana. Our focus is to improve paediatric medicine, research, innovation and advocacy, to raise the awareness about the importance of children’s involvement in the clinical trials. Our campaign dedicated to Rare Disease Day is growing through years, we have made photos, posts, translated the official video of Rare Disease Day in Albanian and disseminated them through our social media. To expand more our campaign we participated in a program in our National television talking about Rare Diseases and Rare Disease Day. We will continue strongly to raise awareness through campaigns in schools with our children and sharing posts and videos in our social media.


https://www.teddynetwork.net/ypag-kids-albania/

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