Adventuresinlove4Andie logo
Contact person:
Maria Vowles
Event in United States
RareDisease Day Speaker
During the weeks around
14 Jan 2020 - 06 Mar 2020 Several
Perthes Kids Rare Art Contest
We will be having our
01 Feb 2020 - 29 Feb 2020
Rare Disease Day Virtual
Join us for the 5th
01 Feb 2020 - 29 Feb 2020
$29 on the 29th
Little Zebra Fund is
15 Feb 2020 - 29 Feb 2020 Nationwide
Second Annual World Rare
Join the Rare and Undiagnosed
22 Feb 2020 Charlotte, NC
SEE RARE RUN Virtual Race
SEE RARE RUN is hosting
23 Feb 2020 - 29 Feb 2020
3rd Annual Rare Disease
The Rare Disease Conference
25 Feb 2020 Paterson, NJ
NYPD Rare Disease Day
The NYC Police Department
28 Feb 2020 New York City, NY
Rare Disease Day Symposium
Since 2015, the Frank
28 Feb 2020 North Haven, CT
Rare Disease Day 2020
The UNC Catalyst for
28 Feb 2020 Chapel Hill
Rare Disease Day at NIH
Each year, NCATS and
28 Feb 2020 Bethesda
Race for Ryland
Lace up your shoes
29 Feb 2020 San Antonio
2020 Vegas Cares About
Registration is open
29 Feb 2020 Henderson
Rare Disease Day Symposium
One in 10 people in
29 Feb 2020 Grand Rapids
Austin Runs for Rare
Firefly Fund is organizing
29 Feb 2020 Austin
LA Clippers NBA Game Event
NORD and California
01 Mar 2020 Los Angeles
United States


We will be raising awareness for a rare disease vascular Ehlers-Danlos Syndrome (vEDS) in memory of Andie Mae G. Carpenter who passed away from complication of this disease on January 31, 2019.

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  • We do this in memory of Andie!  Rare disease awareness is key to better treatment!