Friends

CF "Sister Dalila" logo
Contact person:
Oksana Kulish
Category:
EURORDIS Members
Contact
Event in Ukraine
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Photo shoot with participation
We have started #orphanbell
10 Jan 2020 Lviv
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Christmas Debates
Patients with different
17 Jan 2020 Lviv
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#orphanbell
In the frame of  Rare
01 Feb 2020 - 29 Feb 2020 Lviv
Ukraine

CF "Sister Dalila"

We will create awareness about rare diseases again and again year by year!!!! There must not be white spots on the world map. We join together rare diseases in our city, our region our country. Patient's voice is strong when it is not alone!!!


http://poryatunok.info

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