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Emily Bailey
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Event in United States
SEE RARE RUN Virtual Race
SEE RARE RUN is hosting
23 Feb 2020 - 29 Feb 2020
Race for Ryland
Lace up your shoes
29 Feb 2020 San Antonio
2020 Vegas Cares About
Registration is open
29 Feb 2020 Henderson
United States

Ryland Grace Memorial

The Ryland Grace Memorial Committee will be helping raise awareness for rare diseases by holding a 5k event on February 29th in San Antonio, TX. The event is to honor our rare warrior Ryland Grace who past away from Pyruvate Dehydrogenase Complex Deficiency (PDCD) on March 1, 2019 just a short 8 days after being born. We hope to raise funds to help NORDs efforts in funding research and offer support for the many patients and families. Rare does not mean you are alone and it does not mean you are forgotten!


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