Friends

Ryland Grace Memorial logo
Contact person:
Emily Bailey
Category:
Others
Contact
Event in United States
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RareDisease Day Speaker
During the weeks around
14 Jan 2020 - 06 Mar 2020 Several
Perthes Kids Rare Art Contest
We will be having our
01 Feb 2020 - 29 Feb 2020
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Rare Disease Day Virtual
Join us for the 5th
01 Feb 2020 - 29 Feb 2020
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Rare Disease Family Night
The Rare Disease Family
04 Feb 2020 Paterson, NJ
$29 on the 29th
Little Zebra Fund is
15 Feb 2020 - 29 Feb 2020 Nationwide
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Second Annual World Rare
Join the Rare and Undiagnosed
22 Feb 2020 Charlotte, NC
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Alabama Rare Disease Symposium
Join us for the 3rd
22 Feb 2020 Birmingham
SEE RARE RUN Virtual Race
SEE RARE RUN is hosting
23 Feb 2020 - 29 Feb 2020
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Rare Disease Research at
Stop by the Yale New
26 Feb 2020 New Haven
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Soft Bones Southwest Patient
The Phoenix Southwest
27 Feb 2020 - 29 Feb 2020 Gilbert, Phoenix
NYPD Rare Disease Day
The NYC Police Department
28 Feb 2020 New York City, NY
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Rare Disease Day Symposium
Since 2015, the Frank
28 Feb 2020 North Haven, CT
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Rare Disease Day 2020
The UNC Catalyst for
28 Feb 2020 Chapel Hill
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Rare Disease Day at NIH
Each year, NCATS and
28 Feb 2020 Bethesda
RARE DISEASE DAY CELEBRATION
RARE DISEASE DAY CELEBRATIONPlease
28 Feb 2020 Austin
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RMS Rare Disease Day Fun
Robious Middle School
28 Feb 2020 Midlothian
Race for Ryland
Lace up your shoes
29 Feb 2020 San Antonio
2020 Vegas Cares About
Registration is open
29 Feb 2020 Henderson
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Rare Disease Day Symposium
One in 10 people in
29 Feb 2020 Grand Rapids
LA Clippers NBA Game Event
NORD and California
01 Mar 2020 Los Angeles
Topgolf Tournament for
Join us for a great
01 Mar 2020 Columbus
United States

Ryland Grace Memorial

The Ryland Grace Memorial Committee will be helping raise awareness for rare diseases by holding a 5k event on February 29th in San Antonio, TX. The event is to honor our rare warrior Ryland Grace who past away from Pyruvate Dehydrogenase Complex Deficiency (PDCD) on March 1, 2019 just a short 8 days after being born. We hope to raise funds to help NORDs efforts in funding research and offer support for the many patients and families. Rare does not mean you are alone and it does not mean you are forgotten!


http://facebook.com/race4ryland

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