Indian Osteogenesis Imperfecta Foundation (IOIF)
We participated in a marathon organised by Organization for Rare Diseases India (ORDI). ORDI, is an umbrella organization for Rare Diseases patients in India. This marathon is called as Race for 7. Our patient advocacy group was the support partners for the event. Through this event we tried to raise awareness about Osteogenesis Imperfecta and about our our OI foundation.