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Contact person:
Ornela Cullufe
Event in Albania
Rare Disease Day 2019
Hosting an event with
28 Feb 2019

KIDS Albania

KIDS Albania, the first Young Persons' Advisory Group in Albania is promoted by Consorzio per Valutazioni Biologiche e Farmacologiche in collaboration with TEDDY Network (European Network of Excellence for Paediatric Clinical Research) and the University Hospital Center 'Mother Teresa' Tirane. Our focus is to improve paediatric medicine, working together and closely with researchers to advocate children in healthcare, to raise the awareness about the importance of children’s involvement in the clinical trials and to define priorities for future research. This is the second year for us supporting the Rare Disease Day campaign. We will raise awareness about Rare Disease Day in schools where our members study. KIDS Albania has translated the Rare Disease Day official video and patients testimonials videos in Albanian. We will share posts and videos in our social media. KIDS Albania will participate in a national TV program on health and will promote the Rare Disease Day.

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