The Orphan Disease Center logo
Contact person:
Samantha Charleston
Event in United States
Rare Disease Day
PRISMS will be joining
01 Feb 2019 - 28 Feb 2019
Rare Disease Day Virtual
This is our 4th annual
01 Feb 2019 - 28 Feb 2019 Any
Beyond the Diagnosis at
Broad Institute is
01 Feb 2019 - 01 Apr 2019 Cambridge
KFS #ShowYourKFStripes
Rare Disease Day 2019! 
01 Feb 2019 - 01 Mar 2019 Everywhere
Red Beard: film viewing
Chloe's Fight Rare
02 Feb 2019 Minneapolis
2019 Perthes Kids Art Contest
2019 Perthes Kids Art
04 Feb 2019 - 28 Feb 2019 Santa Monica
Center for Rare Disease Center
05 Feb 2019 - 29 Feb 2020 Pittsburgh, online
Rare Disease Family Night
Awareness family night.
13 Feb 2019 Paterson, NJ
Medical Grand Rounds
Medical Grand Rounds
14 Feb 2019 New Haven
$28 on the 28th
Little Zebra Fund is
16 Feb 2019 - 28 Feb 2019 ALL
Mississippi Rare Disease
Please join Mississippi
19 Feb 2019 Jackson
Georgia Rare Disease Day
Please join Georgia
22 Feb 2019 Atlanta
See Rare Run Virtual 5K
Welcome to the SECOND SEE
22 Feb 2019 - 28 Feb 2019
Texas Rare Disease Day
osted by Baylor College
23 Feb 2019 Houston
World Rare Disease Day
Join the Rare and Undiagnosed
23 Feb 2019 Charlotte, NC
Rare Disease Day Houston
The 4th annual Rare
23 Feb 2019 Houston
Rare Disease Week on Capitol
Rare Disease Week on
24 Feb 2019 - 28 Feb 2019 Washington
Annual Rare Disease Conference
Join the worldwide
25 Feb 2019 Paterson, NJ
5th Annual Nemours Rare
Nemours Alfred I. duPont
25 Feb 2019 - 28 Feb 2019 Wilmington
Iron hack
About one in 10-20
25 Feb 2019 - 27 Feb 2019 Tampa
RP - Resilient with Purpose
A global call to action
26 Feb 2019 - 28 Feb 2019
Zebra 5K In Person & Virtual
The Zebra 5K Run/Walk is
26 Feb 2019 - 28 Feb 2019 New Hope
Connecting Patients & Researchers
Meeting objectives:To
27 Feb 2019 Ann Arbor
Illinois Rare Disease Day
Please join Illinois
27 Feb 2019 Springfield
Kentucky Rare Disease Day
Please join Kentucky
27 Feb 2019 Frankfort
Rare Disease Day 2019
Rare Disease Day
27 Feb 2019 Chapel Hill
7th Annual Rare Disease
This year our Rare
27 Feb 2019
Rare Disease Day Celebration
Join us at the University
27 Feb 2019 Ann Arbor, Michigan
Clinical Trials 101 (online)
Clinical Trials 101:
27 Feb 2019 Lincoln
This year, join RARE.
28 Feb 2019 Yonkers, NY
Hope Into Action
We are celebrating
Connecticut Rare Disease
Please join Connecticut
28 Feb 2019 Hartford
Ohio Rare Disease Day 2019
Please join Ohio Rare
28 Feb 2019 Columbus
Arizona Rare Disease Day
Please join Arizona
28 Feb 2019 Phoenix
Washington Rare Disease
Please join Washington
28 Feb 2019 Spokane
Oklahoma Rare Disease Day
Please join patients,
28 Feb 2019 Oklahoma City
Maryland Rare Disease Day
Please join Maryland
28 Feb 2019 Frederick
Rare Disease day meet and
 Join me at Murphy's
28 Feb 2019 Irondequoit, NY
Rare Disease Day
Delaware HOSA-Future
28 Feb 2019 Wilmington, Delaware
Rare Disease Day Movie
In support of BabyBane
28 Feb 2019 Atlanta
Lighting Up Warren City
The City Mayor Jim
28 Feb 2019 - 01 Mar 2019 Warren
Focus on Rare Disease:
Broad Institute's fourth
28 Feb 2019 Cambridge
Inflammatory Breast Cancer
The Duke Consortium
28 Feb 2019 Durham
Dine and Donate
Time: 5pm-8pmLocation:
28 Feb 2019 Haddonfield
Art for Angioma Alliance
February 28th is I
28 Feb 2019 Norfolk, Virginia
Advocate on Rare Disease
Advocate on Rare
28 Feb 2019 San Francisco
Rare Disease Day Symposium
Multiple Hereditary
28 Feb 2019 - 01 Mar 2019 La Jolla San Diego...
‘Come Show you care’ Rare
We will be taking to
28 Feb 2019 New Smyrna Beach
Rare Disease Day 2019
The event will consistent
28 Feb 2019 Helen DeVos Children's...
Rare Disease Day
The primary objective
28 Feb 2019 New York City
South Carolina Rare Disease
Please join South Carolina
01 Mar 2019 Charleston
The 10th Annual Conference
01 Mar 2019 - 02 Mar 2019 Notre Dame
Batten Bash
Join us for a Bash
01 Mar 2019 Cascades Manor House...
Wisconsin Rare Disease
Please join Wisconsin
02 Mar 2019 Greenfield
San Jose's First Annual
My name is Mikela,
02 Mar 2019 San Jose
Oregon Rare Disease Day
Please join Oregon
07 Mar 2019 Portland
Michigan Rare Disease Day
Please join Michigan
07 Mar 2019 Lansing
New Hampshire Rare Disease
Please join New Hampshire
07 Mar 2019 Concord
New Jersey Rare Disease
Please join New Jersey
11 Mar 2019 Trenton
Minnesota Rare Disease
Please join Minnesota
11 Mar 2019 St. Paul
Rare Disease Panel
Calling all students,
21 Mar 2019 Muncie
United States

The Orphan Disease Center

Mark Your Calendars and join us for Rare Disease Day! On Thursday, February 28th from 4-6pm, The Orphan Disease Center will partner withAmicus Therapeutics to recognize the rare disease community. Stop by for snacks, drinks, and *DISCOUNTED MDBR REGISTRATION!!!

*Please note, you must be at the event to receive discounted registration.

Keswick Cycle experts will be on hand to answer all your training, safety, and how-to questions, plus meet members of the rare disease community!

Please email Samantha Charleston ([email protected]) with any questions.

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