IIH UK logo
Contact person:
Michelle Williamson
Other Patient Groups
Event in United Kingdom
#ShareYourRare to #FightEB
For Rare Disease Day
01 Feb 2019 - 28 Feb 2019 Global, Nationwide,...
Welsh Rare Disease Day
Join Rare Disease UK
14 Feb 2019 Cardiff
Show Your Rare showcase
CDH UK is bringing
23 Feb 2019 Edinburgh
Genetics Matters
For Rare Disease Day
23 Feb 2019 Newcastle Upon Tyne
‘Bridging Health and Social
Goals of this Symposium:
25 Feb 2019 Newcastle upon Tyne
Rare Disease Day 2019
Royal Holloway will
26 Feb 2019 Egham, Surrey
Drug Repurposing for Rare
Findacure's Drug Repurposing
27 Feb 2019 London
Westminster Rare Disease
Join Rare Disease UK
27 Feb 2019 London
Rare Disease Day - University
The Biomedical Society,
28 Feb 2019 Wolverhampton
Rare Disease day Cambridge
All welcome, free tickets
28 Feb 2019 Cambridge
Holyrood Rare Disease Day
Join Rare Disease UK
05 Mar 2019 Edinburgh
3rd Annual Welsh Rare Inherited
3rd Annual Welsh Rare
13 Mar 2019 Cardiff
United Kingdom


This rare disease day we are: 1) asking the people we support to send us their stories regarding their experience with health and social care. These will appear on our social media and website! 2) Encouraging the people we support to wear blue and green on RDD (the colours of our rare disease) 3) We will be organising get-togethers in our 14 Regional groups.

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