Friends

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Contact person:
Valerie Kiln-Barfoot
Category:
EURORDIS Members
Contact
Event in United Kingdom
Welsh Rare Disease Day
Join Rare Disease UK
14 Feb 2019 Cardiff
Rare Disease Day 2019
Royal Holloway will
26 Feb 2019 Egham, Surrey
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Drug Repurposing for Rare
Findacure's Drug Repurposing
27 Feb 2019 London
Westminster Rare Disease
Join Rare Disease UK
27 Feb 2019 London
Holyrood Rare Disease Day
Join Rare Disease UK
05 Mar 2019 Edinburgh
United Kingdom

Jeune Syndrome Foundation

We will be raising awareness of rare disease day through our social media platforms and website. We will also be encouraging our members to take part and organise fundraising and awareness events in their area
http://www.jeunes.org.uk

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