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Keratoconus Group logo
Contact person:
Sophia Devetzi
Category:
Other Patient Groups
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Event in Worldwide
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Cystinosis Rare Disease
#MyCystinosis Awareness
01 Feb 2018 - 28 Feb 2018 Lake Forest
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Jordan's Syndrome Facebook
Facebook live event
28 Feb 2018
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Rare Disease Day 2018
Today on Rare Disease
28 Feb 2018 Global
Worldwide

Keratoconus Group

Keratoconus Group is a support community for people who have corneal ectatic disorders or have had corneal transplant. Our team of volunteers work tirelessly throughout the year and on the Rare Disease Day to raise awareness about rare diseases and their impact on patients' lives. We spread the word through our website and social media accounts and encourage our community members to talk with their family, friends, and colleagues about rare diseases, and get involved with or host an event for the day.


https://www.keratoconusgroup.org/

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