The event is of an educational nature about the existence of rare diseases, education as well as civil assistance regarding the needs and realization of the rights of people with rare diseases as well as their families. You will see us in the territory of the Municipality of Prilep, but also more widely, in the territory of the entire country within this year’s “Beer Fest” Prilep.
The need to be visible to society, to provide basic conditions for people with rare diseases and their families is of great importance.
It is even more important to ensure the ratification of the Convention adopted by the UN for persons with rare diseases.
When we have rare persons who fight primarily for medicine, acceptance in schools, securing suitable jobs depending on the situation, fighting for a fair assessment of work ability and finally exercising the right to a disability pension without tying the person to years of work internship, this education is essential!
That’s why we are there – in the park in front of the building of the Municipality of Prilep!