Description
International Rare Disease Day is an annual celebration' day held each year on the last day of February. This year in Tunisia the theme is "living with a rare disease during the covid pandemy".
In this context, l'Alliance Tunisienne des Maladies Rares in collaboration with other organizations are pleased to present a webinar on Friday, February 26 at 3 pm to talk about the epidemic situation and vaccination as well as many testimonies of families of patients with rare diseases on:
- Failure of the care circuit
- Breakdown of the supply chain;