California Rare Disease Day Virtual Event
17 February 2021
, United States
Hosted by National Organization for Rare Disorders (NORD)
California Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate California legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where California is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.
