Event

14 Jan 2020
When:
Tue 14 January, 2020
To :
Fri 06 March, 2020
Location
http://www.rarenewengland.org/RNE-Honors-RDD-Speaker-Series-2020.html
Several
USA
2020 events in United States
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During the weeks around
14 Jan 2020 - 06 Mar 2020 Several
We will be having our 3rd
01 Feb 2020 - 29 Feb 2020
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Join us for the 5th annual
01 Feb 2020 - 29 Feb 2020
Broad Institute is proud
03 Feb 2020 - 30 Mar 2020 Cambridge
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The Rare Disease Family
04 Feb 2020 Paterson, NJ
Little Zebra Fund is a
15 Feb 2020 - 29 Feb 2020 Nationwide
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You’re invited! Join us
21 Feb 2020
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ObjectivesTheme "Re-think,
21 Feb 2020
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Join the Rare and Undiagnosed
22 Feb 2020 Charlotte, NC
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Join us for the 3rd annual
22 Feb 2020 Birmingham
SEE RARE RUN is hosting
23 Feb 2020 - 29 Feb 2020
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For International Rare
24 Feb 2020 - 29 Feb 2020 Boston
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Stop by the Yale New Haven
26 Feb 2020 New Haven
The NYC Police Department
27 Feb 2020 New York City, NY
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The division of genetics
27 Feb 2020 New York City
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The Phoenix Southwest Patient
27 Feb 2020 - 29 Feb 2020 Gilbert, Phoenix
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We will have a table set
27 Feb 2020 Pittsburgh
We will have refreshments
27 Feb 2020 Frankfort
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Since 2015, the Frank H.
28 Feb 2020 North Haven, CT
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The UNC Catalyst for Rare
28 Feb 2020 Chapel Hill
Marking International Rare
28 Feb 2020 Cambridge
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Each year, NCATS and the
28 Feb 2020 Bethesda
RARE DISEASE DAY CELEBRATIONPlease
28 Feb 2020 Austin
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Join us to celebrate Rare
28 Feb 2020 Gainesville
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Robious Middle School 6th
28 Feb 2020 Midlothian
Lace up your shoes and
29 Feb 2020 San Antonio
Registration is open for
29 Feb 2020 Henderson
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Join RSDSA for a mini-winter
29 Feb 2020 South Haven, MI
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One in 10 people in the
29 Feb 2020 Grand Rapids
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Please join us as we come
29 Feb 2020 San Jose
On line meeting hosted
29 Feb 2020
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This is a benefit concert,
29 Feb 2020 Jeffersonville
NORD and California RAN
01 Mar 2020 Los Angeles
Join us for a great day
01 Mar 2020 Columbus
United States

RareDisease Day Speaker Series 14 January 2020 - 06 March 2020 http://www.rarenewengland.org/RNE-Honors-RDD-Speaker-Series-2020.html, Several, USA
Hosted by Rare New England

During the weeks around Rare Disease Day, RNE arranges for patients and/or family members to speak to medical audiences at major teaching hospitals, medical schools and genetic counseling programs around New England. The presentation topics includes any combination of the following possibilities: the diagnostic journey, living with the disease, coping strategies, challenges in the healthcare and/or educational systems, and others.

 

At each event, the patient presentation is preceded by a brief clinical overview of the disease by a geneticist to ensure that the audience has a medical foundation about the condition.

 

These sessions provide the medical community the chance to see patients with disorders they might not otherwise see. This opportunity also makes it more likely that they will recognize such patients in the future.

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