21 Feb 2020
Fri 21 February, 2020

United States
2020 events in United States
During the weeks around
14 Jan 2020 - 06 Mar 2020 Several
We will be having our 3rd
01 Feb 2020 - 29 Feb 2020
Join us for the 5th annual
01 Feb 2020 - 29 Feb 2020
Broad Institute is proud
03 Feb 2020 - 30 Mar 2020 Cambridge
The Rare Disease Family
04 Feb 2020 Paterson, NJ
Little Zebra Fund is a
15 Feb 2020 - 29 Feb 2020 Nationwide
You’re invited! Join us
21 Feb 2020
ObjectivesTheme "Re-think,
21 Feb 2020
Join the Rare and Undiagnosed
22 Feb 2020 Charlotte, NC
Join us for the 3rd annual
22 Feb 2020 Birmingham
SEE RARE RUN is hosting
23 Feb 2020 - 29 Feb 2020
For International Rare
24 Feb 2020 - 29 Feb 2020 Boston
Stop by the Yale New Haven
26 Feb 2020 New Haven
The NYC Police Department
27 Feb 2020 New York City, NY
The division of genetics
27 Feb 2020 New York City
The Phoenix Southwest Patient
27 Feb 2020 - 29 Feb 2020 Gilbert, Phoenix
We will have a table set
27 Feb 2020 Pittsburgh
We will have refreshments
27 Feb 2020 Frankfort
Since 2015, the Frank H.
28 Feb 2020 North Haven, CT
The UNC Catalyst for Rare
28 Feb 2020 Chapel Hill
Marking International Rare
28 Feb 2020 Cambridge
Each year, NCATS and the
28 Feb 2020 Bethesda
28 Feb 2020 Austin
Join us to celebrate Rare
28 Feb 2020 Gainesville
Robious Middle School 6th
28 Feb 2020 Midlothian
Lace up your shoes and
29 Feb 2020 San Antonio
Registration is open for
29 Feb 2020 Henderson
Join RSDSA for a mini-winter
29 Feb 2020 South Haven, MI
One in 10 people in the
29 Feb 2020 Grand Rapids
Please join us as we come
29 Feb 2020 San Jose
On line meeting hosted
29 Feb 2020
This is a benefit concert,
29 Feb 2020 Jeffersonville
NORD and California RAN
01 Mar 2020 Los Angeles
Join us for a great day
01 Mar 2020 Columbus
United States

Empowered #patientchat – Driving Change: How Rare Disease Patients Can Get Involved 21 February 2020 , United States
Hosted by Patient Empowerment Network

You’re invited! Join us for an Empowered #patientchat with special guest RDMD (@rdmd). We’re excited to chat with them about Driving Change: How Rare Disease Patients Can Get Involved. You can read more about RDMD and their work here: https://www.rdmd.com/

This topic was inspired by the upcoming Rare Disease Day on Saturday, February 29, 2020. This day’s objective is “to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.”

In the US, a rare disease is defined as a condition affecting 200,000 people or fewer. There are about 300 million people living with these 6,000+ diseases in the United States. Individuals with rare diseases may face challenges that are different from those experienced in more common medical conditions.

We hope to see you Friday, February 21st on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

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