Rare Disease Day Celebration 2019
27 February 2019
Brehm Center for Diabetes (1000 Wall Street), Ann Arbor, Michigan, United States of America
Hosted by University of Michigan and Lipodystrophy United
Join us at the University of Michigan's Brehm Center for Diabetic Research as we discuss bridging the gap between health and social care. We will providing an update on the recent exciting findings in the lipodystrophy field, lecturing on why nutrition is a central component in treating lipodystropy and providing a platform for patients to express their struggles and challenges with lipodystrophy.
Our event will have speakers that will cover topics such as reviewing how clinical trials are conducted overall and how they are different from normal clinical care, explaning the expanded access/compassionate use process and what it entails, and defining the patient-centric view of the current lipodystrophy care delivery model and what we can do to close the gap within it.
The event will start at 4:00 PM and is expected to end at 8:00 PM. Dinner will be provided.