Hope Into Action
28 February 2019
1929 Van Ness Avenue, SAN FRANCISCO, United States
Hosted by CSNK2A1 Foundation
We are celebrating the second year of CSNK2A1 Foundation with delicious food, games, wine & tequila, of course! CSNK2A1 Foundation is devoted to helping and advocating for individuals with Okur-Chung Neurodevelopmental Syndrome (“OCNDS”) and funding research that will lead to meaningful changes in the lives of those with OCNDS. To date, there are at least 70 people in the world diagnosed with OCNDS. Although life with a rare disease can be difficult, February 28th is a day to celebrate community, hope, friendship, knowledge, acceptance and understanding.