Event

23 Feb 2018
When:
Fri 23 February, 2018
To :
Sun 25 February, 2018
Location
San Diego, CA
United States of America
2018 events in United States
For Rare Disease Day, we
01 Feb 2018 - 28 Feb 2018
image
Join us for the 3rd annual
01 Feb 2018 - 28 Feb 2018
image
We will be raising awareness
01 Feb 2018 - 28 Feb 2018 Antioch
image
Take Your Rare Disease
01 Feb 2018 - 20 Feb 2018 worldwide
This year's Georgia Rare
15 Feb 2018 Atlanta
image
It's time! We are excited
18 Feb 2018 Henderson
9th Annual SBP Rare Disease
23 Feb 2018 - 25 Feb 2018 San Diego, CA
Sanford Research and the
23 Feb 2018 Sioux Falls
image
Let's Raise AWARENESS!!!Form
24 Feb 2018 Hialeah Gardens,...
Join the Coordination of
24 Feb 2018 Sioux Falls, South...
In recognition of Rare
24 Feb 2018 San Diego
image
Come join us and 35 rare
24 Feb 2018 Houston
image
TAKE A STAND AND JOIN OUR
24 Feb 2018 Boca Raton
image
Rare Disease Week on Capitol
25 Feb 2018 - 01 Mar 2018 Novato
image
Join our local BPAN Yoga
25 Feb 2018 Boca Raton, FL
image
Our event will be held
26 Feb 2018 Scottsdale
FDA is observing 2018 Rare
26 Feb 2018 - 02 Mar 2018
image
6th grade science systems
28 Feb 2018 Richmond
image
Inspired by Megan, a local
28 Feb 2018 Saratoga Springs
image
Inspired by Megan, a local
28 Feb 2018 Saratoga Springs
image
Rare disease impacts West
28 Feb 2018 Grand Rapids
image
I am representing The Fibrous
28 Feb 2018 Avon, Indiana
image
My name is Grace Rosner, I
28 Feb 2018 - 09 Mar 2018 Dobbs Ferry
image
Hello,I am an Ambassador
28 Feb 2018 Canton
This year, Iowa State University
28 Feb 2018 Ames, Iowa
image
Join us at the Concord
28 Feb 2018 Concord, Hayward
image
The Rose Kennedy Greenway
28 Feb 2018 Boston
Delaware HOSA-Future Health
28 Feb 2018 Dover
image
As part of our goal to
28 Feb 2018 Durham
For the 3rd year, the PURA
22 Jun 2018 - 24 Jun 2018 Cambridge
United States

9th Annual SBP Rare Disease Day Symposium and Bi-Annual CDG Family Conference 23 February 2018 - 25 February 2018 San Diego, CA, United States of America
+18586463100
Hosted by Sanford Burnham Prebys Medical Discovery Institute (SBP), CDG CARE, and NGLY1.org

9th Annual SBP Rare Disease Day Symposium and Bi-Annual CDG Family Conference

“Congenital Disorders of Glycosylation and de-Glycosylation”
 
Friday, February 23–Sunday, February 25, 2018
The Dana on Mission Bay, San Diego, CA

Learn more and register online at sbpdiscovery.org/rarediseaseday
 
In February 2018, researchers, clinicians, patients, family members, and advocates will bring their talents and special stories to Mission Bay in San Diego, CA. Together, we will foster new perspectives, ideas, and collaborations to accelerate therapeutic efforts for those living with Congenital Disorders of Glycosylation and de-Glycosylation (CDG).
 
SBP’s scientific symposium will be held Friday, February 23 and Saturday, February 24, 2018, kicking off with an inspiring keynote presentation on “Scientific Wellness and Transforming the Healthcare System” from scientific luminary Leroy Hood, MD, PhD.  CDG-focused scientists and clinicians will speak on the following topics: NGLY1: A Disorder of Glycosylation, PMM2-CDG: Overview, Models and Therapies, and Other Glycosylation Disorders: Models and Therapies. The three-day event will conclude on Sunday, February 25, 2018 with the CDG CARE/NGLY1.org Bi-annual CDG Family Conference. Family topics include education on the science behind CDG, resources available for patients and families, and interventional and therapeutic approaches.
 
For more information, please navigate to sbpdiscovery.org/rarediseaseday.
 
Chair: Hudson Freeze, PhD, [email protected]
Contact: Amy Zimmon, [email protected]

Share this
Photo of the events