Event

26 Feb 2017
When:
Sun 26 February, 2017
Location
3429 Markridge Rd, Glendale, CA 91214
Los Angeles, Glendale
USA
2016 events in United States
image
Join us for our 2nd annual
01 Feb 2017 - 28 Feb 2017
image
The Myotonic Dystrophy
01 Feb 2017 - 28 Feb 2017 San Francisco
image
I am hosting a toy, book
01 Feb 2017 - 28 Feb 2017 Lordsburg
image
Our organization, Klippel-Feil
01 Feb 2017 - 04 Mar 2017 Globally
image
Join us, as we advocate
01 Feb 2017 - 03 Mar 2017 Globally in your...
I'm trying to write 1 article
04 Feb 2017 - 28 Feb 2017
Most gynecologic cancers
08 Feb 2017 Twitter
image
Come for the largest group
11 Feb 2017 Irving, Dallas,...
image
Join us to discuss patient
15 Feb 2017 Boston, MA
image
RARE DISEASE DAY 2017 ATLANTA,
17 Feb 2017 Atlanta, GA
image
Our organization, Kids
21 Feb 2017 Downingtown
The Sanford Children’s
24 Feb 2017 Sioux Falls, SD
Since its inception in
24 Feb 2017 La Jolla, Calif...
In honor of Rare Disease
24 Feb 2017 - 28 Feb 2017
image
Tour de Ettes is a charity
24 Feb 2017 - 01 Mar 2017 World-wide Web
Saturday, February 25 Sanford
25 Feb 2017 Sioux Falls, SD
image
~~We need to educate policymakers,
25 Feb 2017 Hialeah Gardens
image
Join us to visit with booths
25 Feb 2017 Houston
image
The inaugural Vegas Cares
25 Feb 2017 Las Vegas
In recognition of Rare
25 Feb 2017 San Diego
In recognition of Rare
25 Feb 2017 San Diego, CA
image
This Tuesday, February
26 Feb 2017 - 01 Mar 2017 Columbia
image
Spinal CSF Leak Awareness
26 Feb 2017 - 04 Mar 2017
image
Please join us on "Hike
26 Feb 2017 Los Angeles, Gl...
image
Sarcoidosis Awareness Month
27 Feb 2017 Washington DC
image
Rare Disease Week on Capitol
27 Feb 2017 - 02 Mar 2017 Washington
image
Please join patients, families,
27 Feb 2017 Minnesota
Delaware HOSA-Future Health
28 Feb 2017 Wilmington, DE
image
Rutgers University is a
28 Feb 2017 Piscataway
image
I will have a table set
28 Feb 2017 Cumberland
Nemours Alfred I. duPont
28 Feb 2017 Wilmington DE
image
Join MassBio, The MGH Center
28 Feb 2017 Boston
image
The RFK-IDDRC will be hosting
28 Feb 2017 New York, NY
image
Our event is very simple.
28 Feb 2017 Scottsdale
image
The Arizona Carcinoid &
28 Feb 2017 Gilbert, Phoenix,...
image
Registration for event
28 Feb 2017 Kentucky
image
Share your rare! One in
28 Feb 2017 Corvallis
image
Negotiating the Challenges
03 Mar 2017 San Francisco,...
image
Dear Friends and Family,  Please
05 Mar 2017 Glendale
image
PMP/ Appendendiceal Cancer
08 Apr 2017 Philadelphia
image
On May 9 and 10, 2017 the
09 May 2017 - 10 May 2017 New Orleans
PURA Syndrome Foundation
24 Jun 2017 - 25 Jun 2017 Philadelphia
image
Disorder: The Rare Disease
03 Oct 2017 Boston
United States

Hike to Cure CDG 26 February 2017 3429 Markridge Rd, Glendale, CA 91214, Los Angeles, Glendale, USA
+6263767420
Hosted by Amour Fund


Please join us on "Hike to Cure CDG" fundraiser to fund CDG research. Please visit the crowdrise page to donate and / or form a team to help us fund-raise.

We also want to raise awareness about all Rare deseases for Rare Disease Day, which takes place on the last day of February each year.

We will be hiking on the train in Deukmejian Wilderness Park, in Tujunga CA, on March Feb. 26, 2017 at 10 AM.

Thanks for all your love and support.

Here is a short video produced by Amour Fund that describes PMM2-CDG: 

https://youtu.be/WI8-ZKWgAcU

We aim to share Aram’s struggles and successes to bring awareness about PMM2-CDG. Please follow Aram’s journey on:

https://www.facebook.com/AmourFund/

https://twitter.com/AmourFund

https://www.crowdrise.com/amourfund/fundraiser/Amour

Share this