Event

26 Feb 2017
When:
Sun 26 February, 2017
To :
Sat 04 March, 2017
Location

USA
2016 events in United States
image
Join us for our 2nd annual
01 Feb 2017 - 28 Feb 2017
image
The Myotonic Dystrophy
01 Feb 2017 - 28 Feb 2017 San Francisco
image
Join us, as we advocate
01 Feb 2017 - 03 Mar 2017 Globally in your...
image
I am hosting a toy, book
01 Feb 2017 - 28 Feb 2017 Lordsburg
image
Our organization, Klippel-Feil
01 Feb 2017 - 04 Mar 2017 Globally
I'm trying to write 1 article
04 Feb 2017 - 28 Feb 2017
Most gynecologic cancers
08 Feb 2017 Twitter
image
Come for the largest group
11 Feb 2017 Irving, Dallas,...
image
Join us to discuss patient
15 Feb 2017 Boston, MA
image
RARE DISEASE DAY 2017 ATLANTA,
17 Feb 2017 Atlanta, GA
image
Our organization, Kids
21 Feb 2017 Downingtown
The Sanford Children’s
24 Feb 2017 Sioux Falls, SD
In honor of Rare Disease
24 Feb 2017 - 28 Feb 2017
image
Tour de Ettes is a charity
24 Feb 2017 - 01 Mar 2017 World-wide Web
Since its inception in
24 Feb 2017 La Jolla, Calif...
image
Join us to visit with booths
25 Feb 2017 Houston
image
~~We need to educate policymakers,
25 Feb 2017 Hialeah Gardens
In recognition of Rare
25 Feb 2017 San Diego
Saturday, February 25 Sanford
25 Feb 2017 Sioux Falls, SD
In recognition of Rare
25 Feb 2017 San Diego, CA
image
The inaugural Vegas Cares
25 Feb 2017 Las Vegas
image
This Tuesday, February
26 Feb 2017 - 01 Mar 2017 Columbia
image
Spinal CSF Leak Awareness
26 Feb 2017 - 04 Mar 2017
image
Please join us on "Hike
26 Feb 2017 Los Angeles, Gl...
image
Sarcoidosis Awareness Month
27 Feb 2017 Washington DC
image
Please join patients, families,
27 Feb 2017 Minnesota
image
Rare Disease Week on Capitol
27 Feb 2017 - 02 Mar 2017 Washington
Delaware HOSA-Future Health
28 Feb 2017 Wilmington, DE
image
Our event is very simple.
28 Feb 2017 Scottsdale
Nemours Alfred I. duPont
28 Feb 2017 Wilmington DE
image
Join MassBio, The MGH Center
28 Feb 2017 Boston
image
Rutgers University is a
28 Feb 2017 Piscataway
image
The Arizona Carcinoid &
28 Feb 2017 Gilbert, Phoenix,...
image
The RFK-IDDRC will be hosting
28 Feb 2017 New York, NY
image
Registration for event
28 Feb 2017 Kentucky
image
Share your rare! One in
28 Feb 2017 Corvallis
image
I will have a table set
28 Feb 2017 Cumberland
image
Negotiating the Challenges
03 Mar 2017 San Francisco,...
image
Dear Friends and Family,  Please
05 Mar 2017 Glendale
image
PMP/ Appendendiceal Cancer
08 Apr 2017 Philadelphia
image
On May 9 and 10, 2017 the
09 May 2017 - 10 May 2017 New Orleans
PURA Syndrome Foundation
24 Jun 2017 - 25 Jun 2017 Philadelphia
image
Disorder: The Rare Disease
03 Oct 2017 Boston
United States

Spinal CSF Leak Awareness Week 26 February 2017 - 04 March 2017 , USA
Hosted by Spinal CSF Leak Foundation

Spinal CSF Leak Awareness Week, or #leakweek, seeks to elevate the awareness of an underdiagnosed, often disabling but treatable and curable cause of headache, spinal cerebrospinal fluid (CSF) leak.  Both genders and all ages can be affected.  These may occur as a result of medical procedures, with an unknown incidence or these may occur spontaneously, with an estimated annual incidence of 5 in 100,000 per year.  Delayed diagnosis and misdiagnosis are common, as we see with most uncommon or uncommonly recognized disorders.  The hallmark symptom is an upright headache, that is, a headache that is worse when upright and improved with lying flat.  An upright headache could be a spinal CSF leak.  This is treatable and often curable.

Share this