Event

01 Feb 2017
When:
Wed 01 February, 2017
To :
Fri 03 March, 2017
Location
Globally in your area & virtually
2016 events in United States
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Join us for our 2nd annual
01 Feb 2017 - 28 Feb 2017
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The Myotonic Dystrophy
01 Feb 2017 - 28 Feb 2017 San Francisco
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Join us, as we advocate
01 Feb 2017 - 03 Mar 2017 Globally in your...
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I am hosting a toy, book
01 Feb 2017 - 28 Feb 2017 Lordsburg
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Our organization, Klippel-Feil
01 Feb 2017 - 04 Mar 2017 Globally
I'm trying to write 1 article
04 Feb 2017 - 28 Feb 2017
Most gynecologic cancers
08 Feb 2017 Twitter
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Come for the largest group
11 Feb 2017 Irving, Dallas,...
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Join us to discuss patient
15 Feb 2017 Boston, MA
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RARE DISEASE DAY 2017 ATLANTA,
17 Feb 2017 Atlanta, GA
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Our organization, Kids
21 Feb 2017 Downingtown
The Sanford Children’s
24 Feb 2017 Sioux Falls, SD
In honor of Rare Disease
24 Feb 2017 - 28 Feb 2017
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Tour de Ettes is a charity
24 Feb 2017 - 01 Mar 2017 World-wide Web
Since its inception in
24 Feb 2017 La Jolla, Calif...
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Join us to visit with booths
25 Feb 2017 Houston
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~~We need to educate policymakers,
25 Feb 2017 Hialeah Gardens
In recognition of Rare
25 Feb 2017 San Diego
Saturday, February 25 Sanford
25 Feb 2017 Sioux Falls, SD
In recognition of Rare
25 Feb 2017 San Diego, CA
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The inaugural Vegas Cares
25 Feb 2017 Las Vegas
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This Tuesday, February
26 Feb 2017 - 01 Mar 2017 Columbia
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Spinal CSF Leak Awareness
26 Feb 2017 - 04 Mar 2017
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Please join us on "Hike
26 Feb 2017 Los Angeles, Gl...
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Sarcoidosis Awareness Month
27 Feb 2017 Washington DC
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Please join patients, families,
27 Feb 2017 Minnesota
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Rare Disease Week on Capitol
27 Feb 2017 - 02 Mar 2017 Washington
Delaware HOSA-Future Health
28 Feb 2017 Wilmington, DE
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Our event is very simple.
28 Feb 2017 Scottsdale
Nemours Alfred I. duPont
28 Feb 2017 Wilmington DE
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Join MassBio, The MGH Center
28 Feb 2017 Boston
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Rutgers University is a
28 Feb 2017 Piscataway
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The Arizona Carcinoid &
28 Feb 2017 Gilbert, Phoenix,...
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The RFK-IDDRC will be hosting
28 Feb 2017 New York, NY
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Registration for event
28 Feb 2017 Kentucky
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Share your rare! One in
28 Feb 2017 Corvallis
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I will have a table set
28 Feb 2017 Cumberland
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Negotiating the Challenges
03 Mar 2017 San Francisco,...
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Dear Friends and Family,  Please
05 Mar 2017 Glendale
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PMP/ Appendendiceal Cancer
08 Apr 2017 Philadelphia
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On May 9 and 10, 2017 the
09 May 2017 - 10 May 2017 New Orleans
PURA Syndrome Foundation
24 Jun 2017 - 25 Jun 2017 Philadelphia
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Disorder: The Rare Disease
03 Oct 2017 Boston
United States

Klippel-Feil Syndrome Freedom 01 February 2017 - 03 March 2017 Globally in your area & virtually
Hosted by Klippel-Feil Syndrome Freedom

Join us, as we advocate as a community for Klippel-Feil syndrome this month.

Visit Klippel-Feil Syndrome Freedom on Facebook for daily posts!

Research is Key | Rare Disease Day Feb. 28th  #KFStrong  #DefyRARE

V I R T U A L or in your area! Visit Facebook and join our event > https://www.facebook.com/events/380196219020655/  to stay up to date on what everyone is doing to raise awareness for Klippel-Feil syndrome. 

This is our day! By taking part in Rare Disease Day, our most important messages will be heard by researchers, physicians, Congress, the public at large, and our peers.

Help make the unknown KNOWN about Klippel-Feil Syndrome! 

Read how here, KFS Article > http://tinyurl.com/h6tgq7z

Submit a PHOTO of you, or your child who has KFS. We will submit photo to Rare Disease Day's Raise and Join your Hands & Hands Across America! 
Read how here > http://tinyurl.com/hmkco6z
Submit by Tuesday Feb 14th 

Wear a Key | Share a Key
The skeleton key is the symbol of hope and freedom for Klippel-Feil syndrome, a rare skeletal disease. Find keys for you and your family! Share keys! Start a conversation about KFS! 
Share them with family, friends, doctors - everybody!

We'll be sharing IMAGES for you to use in our Facebook event and page all month long! 

We have an updated KFS HANDOUT for your use in our 3 groups. Links to join on Facebook. 
Adult Group - Parents Group - Teen & Young Adults Group 
Groups are for those who have a KFS diagnosis, and parents who have a child with a KFS diagnosis.

Twitter @KFS_Freedom  
Instagram @kfs_Freedom

You can copy links provided here and paste them in your browser to get to each link. 

#RareDiseaseDay #WRDD2017 

Thank you!

Klippel-Feil Syndrome Freedom 

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