Twitter Chat: #PatientDriven Rare Disease Research
15 February 2017
Boston, MA, United States
Hosted by MassBio and Cambridge BioMarketing
Join us to discuss patient involvement in rare disease research, new regulations and technologies that are affecting research, how to raise awareness and more during our #PATIENTDRIVEN Twitter Chat.
With new regulations from the FDA & 21st Century Cures Act, how will research for orphan drugs change?
How can patients and industry work together to include rare disease patients and caregivers throughout the drug development process?
How will new technologies like #CRISPR advance the research & treatment of rare diseases?
What actions can both patients and industry partners take to raise awareness for rare diseases and the importance of research?