Awareness KEY for Klippel-Feil syndrome Freedom
01 February 2017 - 04 March 2017
Your area & on social media, Globally, United States
Hosted by Klippel-Feil Syndrome Freedom
Our organization, Klippel-Feil syndrome is promoting and sharing actively across social media, and beyond, to raise awareness for this rare skeletal disease! There are many ways you can get involved in Rare Disease Month, Rare Disease Week, and Rare Disease Day activities all over the world! Read our article: http://tinyurl.com/h6tgq7z We encourage you to start an event near you, or join an event already planned (copy link above and paste in your web browser for the many ways to be involved) We will be working on a project for "Raise and Join your Hands' and 'Hands Across America", visit our Facebook page for more on this activity. Wear a skeleton key, our symbol of hope. Then share one, to raise awareness! Start your own event for Klippel-Feil syndrome and let us know! Tag us! Share our images from Facebook and Instagram @kfs_freedom to help raise awareness for a rare skeletal disease. Share our many images and promo, for the one you love! Visit us on Facebook and on Twitter @KFS_Freedom as we advocate! The skeleton key is our symbol of hope. Research IS key! Action IS key!