Event

25 Feb 2017
When:
Sat 25 February, 2017
Location
2301 E. 60th Street N, Route 5031
Sioux Falls, SD
United States of America
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United States

Great Plains Rare Disease Summit 25 February 2017 2301 E. 60th Street N, Route 5031, Sioux Falls, SD, United States of America
1-877-658-9192
Hosted by Coordination of Rare Diseases at Sanford

Saturday, February 25

Sanford Research Center, Sioux Falls, SD

Mark your calendars for the 2017 rare disease community event. At this event, people living with a rare disease and/or their caregivers will be able to:

Connect with other people within the rare disease community
Attend speaker panels with presentations followed by question and answer sessions
Visit with local organizations and vendors that support the rare disease community

Join us for a day of learning, networking and most importantly, connecting.

This event is free to attendees.

Schedule of Topics

8:45 a.m.
Breakfast

9:20 a.m.
Welcome

9:30-10:10 a.m.
Genetics and Rare Diseases: Working with a Genetic Counselor

10:10-10:50 a.m.
Caregiver Burnout

10:50-11:10 a.m. 
Break

11:10-12:00 a.m.
Experience as a Patient and Provider

12-12:30 p.m.
Lunch

12:30-1:10 p.m.
Panel Discussion
Parents and Providers Working Together: A Diagnostic Journey

1:10-1:50 p.m.
Having a Rare Disease in a Rural Setting

1:50-2:30 p.m.
Transitioning to Adult Care

2:30-2:50 p.m.
Break

2:50-3:30 p.m.
Accessing Benefits

3:30-4:10 p.m.
Research and physician panel
Talking to Researchers

4:10-4:30 p.m.
Closing

Break Out Sessions

11:10 a.m.-12 p.m.
Accessing Therapy

1:10-1:50 p.m.
Social Media and Raising Awareness
Connecting With Others

2:50-3:30 p.m.
Getting Involved: Advocacy Organization

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