Annual Walk Against Rare Diseases
25 February 2017
11700 Hialeah Gardens Bvld, Hialeah Gardens, UNITED STATES
Hosted by Guardian Hands Foundation
~~We need to educate policymakers, medical professionals, patients and caregivers, and the general public and empower them to advocate for those affected by rare diseases. Advocating at the local and national level to improve the lives of people living with a rare disease and their families is necessary.
~~To raise funds and awareness in an effort to fight rare diseases.
~~Increase understanding and eliminate stigma for children living with rare diseases.
In addition, to actively seek help from research and pharmaceutical companies. We provide guidance, support and unity for children in our community through education and support programs. We hope to become a mentor and a role model, to inspire and promote self-confidence.