Event

27 Feb 2020
When:
Thu 27 February, 2020
To :
Sat 29 February, 2020
Location
45 W Page Ave
Gilbert, Phoenix
United States
2020 events in United States
image
RareDisease Day Speaker Series
During the weeks around
14 Jan 2020 - 06 Mar 2020 Several
Perthes Kids Rare Art Contest
We will be having our 3rd
01 Feb 2020 - 29 Feb 2020
image
Rare Disease Day Virtual Race
Join us for the 5th annual
01 Feb 2020 - 29 Feb 2020
Beyond the Diagnosis art exhibit
Broad Institute is proud
03 Feb 2020 - 30 Mar 2020 Cambridge
image
Rare Disease Family Night at
The Rare Disease Family
04 Feb 2020 Paterson, NJ
$29 on the 29th
Little Zebra Fund is a
15 Feb 2020 - 29 Feb 2020 Nationwide
image
Empowered #patientchat – Driving
You’re invited! Join us
21 Feb 2020
image
Rare Disease Day Educational
ObjectivesTheme "Re-think,
21 Feb 2020
image
Second Annual World Rare Disease
Join the Rare and Undiagnosed
22 Feb 2020 Charlotte, NC
image
Alabama Rare Disease Symposium
Join us for the 3rd annual
22 Feb 2020 Birmingham
SEE RARE RUN Virtual Race
SEE RARE RUN is hosting
23 Feb 2020 - 29 Feb 2020
image
Urgent Help for Rare Disease
For International Rare
24 Feb 2020 - 29 Feb 2020 Boston
image
Rare Disease Research at Yale
Stop by the Yale New Haven
26 Feb 2020 New Haven
NYPD Rare Disease Day
The NYC Police Department
27 Feb 2020 New York City, NY
image
Rare Disease Day at Metropolitan
The division of genetics
27 Feb 2020 New York City
image
Soft Bones Southwest Patient
The Phoenix Southwest Patient
27 Feb 2020 - 29 Feb 2020 Gilbert, Phoenix
image
UPMC Children's Rare Disease
We will have a table set
27 Feb 2020 Pittsburgh
KY Rare Disease Day 2020
We will have refreshments
27 Feb 2020 Frankfort
image
Rare Disease Day Symposium
Since 2015, the Frank H.
28 Feb 2020 North Haven, CT
image
Rare Disease Day 2020
The UNC Catalyst for Rare
28 Feb 2020 Chapel Hill
Focus on Rare Disease: Putting
Marking International Rare
28 Feb 2020 Cambridge
image
Rare Disease Day at NIH
Each year, NCATS and the
28 Feb 2020 Bethesda
RARE DISEASE DAY CELEBRATION
RARE DISEASE DAY CELEBRATIONPlease
28 Feb 2020 Austin
image
Rare Disease Day 2020!
Join us to celebrate Rare
28 Feb 2020 Gainesville
image
RMS Rare Disease Day Fun Run
Robious Middle School 6th
28 Feb 2020 Midlothian
Race for Ryland
Lace up your shoes and
29 Feb 2020 San Antonio
2020 Vegas Cares About Rare Kids
Registration is open for
29 Feb 2020 Henderson
image
Leap for a Cure
Join RSDSA for a mini-winter
29 Feb 2020 South Haven, MI
image
Rare Disease Day Symposium 2020
One in 10 people in the
29 Feb 2020 Grand Rapids
image
Rare Disease Day San Jose
Please join us as we come
29 Feb 2020 San Jose
On line Kallmann Syndrome patient
On line meeting hosted
29 Feb 2020
image
Rock Your Rare Disease
This is a benefit concert,
29 Feb 2020 Jeffersonville
LA Clippers NBA Game Event for
NORD and California RAN
01 Mar 2020 Los Angeles
Topgolf Tournament for Myotonic
Join us for a great day
01 Mar 2020 Columbus
United States

Soft Bones Southwest Patient Meeting 27 February 2020 - 29 February 2020 45 W Page Ave, Gilbert, Phoenix, United States
5208331081
Hosted by Soft Bones, Inc Hypophosphatasia foundation

The Phoenix Southwest Patient Region Meeting . All Hypophosphatasia patients & caregivers/family are welcome. Please RSVP to [email protected] by February 15, & be sure to include the phone number, email address & correct name spelling of all who will be attending.  Presenters will be Dr Aleck from Childrens Phoenix hospital Genetics, Dr Pamela Smith from Children's Phoenix Hospital Pediactric Endocinologis, Dr Mitz Wasden Pediatric Dentist, Alexion OneSoure Sandy Teft. 

After the meeting photos will be taken at the Glibert Water tower as they will be lighting it for 3 night in the colors Red and Black for Hypophosphatasia and Rare disease Day

 

Share this
Organised by
Soft Bones, Inc Hypophosphatasia foundation
Photos of the event
return to
United States page
Download materials
News
Thank you for making Rare Disease Day 2020 a success!
Thank you for making Rare Disease Day 2020 a success!
Saturday 29 February was the 13th edition of Rare Disease Day. The campaign continues to grow each year since it was first launched in 2008. Thousands of events were organised over 100 countries and r...
04 Mar 2020
Solidarity with the rare disease community affected by COVID-19
Solidarity with the rare disease community affected by COVID-19
Today as thousands of events place take place around the world to mark the occasion of Rare Disease Day 2020, we share a sincere message of solidarity with the rare disease community who have cancelle...
29 Feb 2020
Read all news