Virtual Run for Rare
26 February 2021 - 28 February 2021
Hosted by Firefly Fund
Firefly Fund is challenging you to Run for Rare starting on World Rare Disease Day, Feb. 28. Over the next month, we want to see you running (or walking) to show your support. The goal of the event is to raise awareness of rare diseases, including Niemann-Pick Disease Type C1 (NPC), and to accelerate a cure for rare neurodegenerative genetic diseases that affect children and currently have no cure. Share your photos on social media by using #RunForRare2021 and tagging Firefly Fund.