Spreading MED13L Awareness Through Social Media
01 February 2021 - 28 February 2021
Barrington; Philadelphia, United States
Hosted by MED13L Foundation
MED13L is a very rare syndrome that is characterized by intellectual disability, speech and language impairment, motor developmental delay with muscular hypotonia and behavioral difficulties. Some may have changes in the structure of the heart, cleft palate, ataxia, or seizures. By spreading awareness, we can help other children with MED13L get the proper diagnosis and medical support for which their families have been searching. Please join our families on Rare Disease Day to support the MED13L Foundation. Share our Facebook Page and our Website to help us raise awareness!!