Rare Disease Day Senedd Reception
25 February 2020
Oriel/ Neuadd, Senedd, Pierhead St, Cardiff CF99 1NA, Cardiff, Wales
Hosted by Genetic Alliance UK
Join Rare Disease UK for our annual Rare Disease Day reception at the Senedd.
– Angela Burns AM, Chair of CPG for Rare, Genetic and Undiagnosed Conditions
– Dr Graham Shortland, Medical Director for Cardiff and Vale UHB and Chair of the Rare Disease Implementation Group
– Sioned Lewis, patient affected by a rare pituitary condition
– Dr Jayne Spink, Chair of Rare Disease UK and Chief Executive of Genetic Alliance UK
For more information, you can also contact Genetic Alliance UK's Policy & Engagement Manager (Wales), Emma Hughes - [email protected]
Please note that if you are unable to attend, you must cancel your ticket 48 hours before the event.
Registration link: https://www.eventbrite.co.uk/e/rare-disease-day-2020-reception-at-the-senedd-tickets-88850501241