Event

25 Feb 2020
When:
Tue 25 February, 2020
Location
Oriel/ Neuadd, Senedd, Pierhead St, Cardiff CF99 1NA
Cardiff
Wales
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Rare Disease Day Senedd Reception 25 February 2020 Oriel/ Neuadd, Senedd, Pierhead St, Cardiff CF99 1NA, Cardiff, Wales
Hosted by Genetic Alliance UK

Join Rare Disease UK for our annual Rare Disease Day reception at the Senedd.

Speakers include:

– Angela Burns AM, Chair of CPG for Rare, Genetic and Undiagnosed Conditions

– Dr Graham Shortland, Medical Director for Cardiff and Vale UHB and Chair of the Rare Disease Implementation Group

– Sioned Lewis, patient affected by a rare pituitary condition

– Dr Jayne Spink, Chair of Rare Disease UK and Chief Executive of Genetic Alliance UK

For more information, you can also contact Genetic Alliance UK's Policy & Engagement Manager (Wales), Emma Hughes - [email protected]

Please note that if you are unable to attend, you must cancel your ticket 48 hours before the event.

Registration link:  https://www.eventbrite.co.uk/e/rare-disease-day-2020-reception-at-the-senedd-tickets-88850501241  

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