Event

26 Feb 2020
When:
Wed 26 February, 2020
Location
Surrey, TW20 0EX
Egham
2020 events in United Kingdom
image
Video of people saying
24 Oct 2018 - 24 Oct 2019 Wordwide
Rare Disease UK is hosting
10 Feb 2020 London
image
Findacure's Drug Repurposing
24 Feb 2020 London
The Office for Rare Conditions
24 Feb 2020 - 28 Feb 2020 Glasgow
Join Rare Disease UK for
25 Feb 2020 Cardiff
Royal Holloway celebrated
26 Feb 2020 Egham
This year for the worldwide
26 Feb 2020 London & Worldwide
Date: Wednesday 26 February
26 Feb 2020 London
Let's "Reframe Rare"! Come
28 Feb 2020 Belfast
Let's "Reframe Rare"! Come
28 Feb 2020 Belfast
image
Hands on activities from
28 Feb 2020 London
The Advocacy of Neuroacanthocytosis
29 Feb 2020 London
image
Please join us for a very
29 Feb 2020 London
image
Cambridge Rare Disease
29 Feb 2020 Cambridge
image
THE WHITWORTH GROUPThe
29 Feb 2020 Manchester
image
Genetics Matters is an
29 Feb 2020 Newcastle Upon Tyne
image
We hope you'll be able
29 Feb 2020 Twitter
Join Rare Disease UK for
04 Mar 2020 Edinburgh
image
We share our colours, our
03 Feb 2021 - 28 Feb 2021
World of Rare Disease Pop
09 Feb 2021 - 11 Feb 2021 Northern Ireland
image
Sheffield Autism Research
21 Feb 2021 - 28 Feb 2021 Sheffield
Virtual Parliamentary EventRare
24 Feb 2021 Online
COLOUR FLAIR FOR RARERare
24 Feb 2021 - 27 Mar 2021 Northern Ireland
On Friday 26 February 2021
26 Feb 2021
Join us for a Rare Disease
26 Feb 2021 Virtual
Thank you councillor Emlyn
28 Feb 2021 Carmarthenshire
We will light the top of
28 Feb 2021 London
Virtual Musical RariTea
28 Feb 2021 Northern Ireland
Northern Ireland Rare Disease
28 Feb 2021 Northern Ireland
The Adenomyosis Advice
28 Feb 2021 UK
The following locations/landmarks
28 Feb 2021
On Rare Disease Day join
28 Feb 2021 Virtual
image
To coincide with Rare Disease
28 Feb 2021
image
RARE CANCER – how rare
28 Feb 2021
What does RARE mean to
28 Feb 2021
image
Rare diseases are not as
28 Feb 2021
image
Our Rare AHC Event:A Virtual
28 Feb 2021 - 07 Mar 2021 Virtual All over...
image
We are excited to announce
01 Mar 2021 - 06 Mar 2021
On 2 March, people living
02 Mar 2021 Edinburgh
image
Coping Through Covid and
06 Mar 2021 LONDON
United Kingdom

Rare Disease Day at Royal Holloway 26 February 2020 Surrey, TW20 0EX, Egham
+441784 443 776
Hosted by Royal Holloway University of London

Royal Holloway celebrated our 10th annual Rare Disease Day. Thank you to all who joined us to celebrate this special day, we hope you will be able to join us in 2021!

Rare Disease Day aims to draw attention to rare diseases and the millions of people who are affected by them, highlighting the need for more research and funding to help people affected and their families.

In Europe, a rare disease is defined as one with an incidence of less than 1 in 2,000 people. While each of them is rare, there are 6-8,000 rare diseases, which together affect 3.5 million people in the UK, taking 20% of all health care costs. Rare diseases are a serious public health concern and an international priority, but unfortunately often very little is known about them by health professionals and the public alike.

People who are affected by a rare disease will mostly receive symptomatic and palliative care because there are hardly any curative treatments. Often, relatives will have to stop working and become full-time carers.

Rare Disease Day encourages us to continue finding ways to work together, and it aims to call on policy makers, healthcare professionals, and care services to better coordinate all aspects of care for people living with a rare disease.

Click here to find out more about Rare Disease Day at Royal Holloway

Share this
Photos of the event