Joint North/South Rare Disease Day Conference
28 February 2020
Riddel Hall, 185 Stanmillis Road, Belfast, United Kingdom
Hosted by Northern Ireland Rare Disease Partnership
Let's "Reframe Rare"! Come along to find out what progress has been made; to learn what is going on; and to shape what happens next!
About this Event
THE DAY IN OUTLINE:
9.15 to 10.12 Doors Open; Registration
Welcome and Opening: Rhoda Walker, NIRDP and Vikky McGrath, Rare Disease Ireland
Update on Rare Disease Strategies and Actions: What has happened? What next? A panel discussion with senior representatives from North and South
Tools for meaningful patient engagement
A showing of “The Patient Effect” Film; video clips of patient and family experience from North and South; and lots of information and networking
What a difference a Genome Makes!
Launch of RariTEA 2020/ Presentation of Poster Prizes
3.30 - Close