Event

26 Feb 2021
When:
Fri 26 February, 2021
To :
Sun 28 February, 2021
Location
12 Hlyboka Street, 79013
Lviv
Ukraine
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PROGRAMME OF THE EVENT On
26 Feb 2021 - 28 Feb 2021 Lviv
Ukraine

"The Day of Orphan Diseases" 26 February 2021 - 28 February 2021 12 Hlyboka Street, 79013, Lviv, Ukraine
380976938796
Hosted by Pulmonary Hypertension Ukrainian Rare Disease Association

PROGRAMME OF THE EVENT

 On February 26, 2021, together with the movement of the orphan community "Orphan Bell" we will hold a meeting "The Day of Orphan Diseases" in the Lviv Regional State Administration (RSA) with the leadership of the Lviv region, representatives of the health and social protection of Lviv region. The meeting will consist of discussions about the situation of orphan patients in Lviv region, their access to diagnosis, vital treatment, rehabilitation, including the following diseases: pulmonary hypertension, tuberous sclerosis, mucopolysaccharidosis, cystic fibrosis, Gaucher disease, CMA, cdmeromet, 5 rickets.

Photo: https://drive.google.com/drive/u/0/folders/1UYGw7dEHSiCsOTIARYiX2mdKyulL7KlF

 

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