28 February 2019 - 03 March 2019
Istanbul, Antaya, Konya,Ankara, Seligenstadt, Frankfurt
Hosted by FAROMDER
#arediseaseday2019 would you please also on the day Blue loop wear as support !!!
There are 7000 different diseases in the world and 95% of these diseases are not treated.
Rare patients in the world 350 million It is estimated that 5 million of this figure in Turkey.
# RareDiseases Community l is a problem. 80% of rare diseases are of genetic origin and their marriage causes an increased risk of genetic disease. consanguinity rate in Turkey is 21%. In Saudi Arabia and Pakistan, this rate was 38.9% and 61.2%, respectively.
The proportion of consanguineous marriages in European countries is low and the rate of consanguineous marriages in the United States is only 0.1%.
# We support the #birmilyonmavikurdele project, which draws attention to rare patients and their families. We are all coming together under the Rare Diseases @ NadirHasAg, which are all united or unorganized
28 ŞUBAT NADİR HASTALIKLAR GÜNÜ İÇİN MAVİ KURDELE TAKMAYI UNUTMA
Hasta ve aileleri olarak #nadirhastaliklar a dikkat çeken #birmilyonmavikurdele projesini destekliyoruz. Bütün dernekleşmiş veya dernekleşememiş tüm # NadirHastalıklar @ NadirHasAg altında biraraya geliyoruz.