Vivre avec une maladie rare au temps du COVID19
26 February 2021
Hosted by Alliance Tunisienne des Maladies Rares
International Rare Disease Day is an annual celebration' day held each year on the last day of February. This year in Tunisia the theme is "living with a rare disease during the covid pandemy".
In this context, l'Alliance Tunisienne des Maladies Rares in collaboration with other organizations are pleased to present a webinar on Friday, February 26 at 3 pm to talk about the epidemic situation and vaccination as well as many testimonies of families of patients with rare diseases on:
- Failure of the care circuit
- Breakdown of the supply chain;