OUR VOICE FOR RARE DISEASE
28 February 2019
Centre des Arts 62 rte de Chêne 1208 Genève, Geneva, Switzerland
Hosted by Ecole Internationale de Genève
‘’OUR VOICE for Rare Diseases’’ is a performance fundraising event which will take place on World Day for Rare Disease, Thursday February 28th from 4pm to 8pm in the Centre des Arts of the International school of Geneva. This event will be the third of its kind in our school community organised with the support of our PTA (parent teacher association). It will highlight several choir performances from the primary and middle school and a talent show with students from the secondary school. This year for the first time, the PTA is organising a panel discussion on Rare Diseases involving experts in the field and students interested in medical issues. The primary school peace corp will share a children story on Rare Diseases. It promises to be a warm, generous, informative and fun event for our community. This event is open to all.
Proceeds raised will go to the Sanfilippo foundation, to the Cystic Fibrosis foundation and to the portal for Rare Diseases in the HUG, Orphanet. We are very fortunate to welcome presidents of these associations at our event.
Stella Kariuki-Pieroth ([email protected])