Our Voice for Rare
27 February 2020
Centre des Arts, 62 rte de Chêne 1208 Genève, Geneva, Switzerland
Hosted by Ecole Internationale
‘’OUR VOICE for Rare Diseases’’ is a performance fundraising event which will take place in our school on , Thursday February 27th from 3pm to 6pm in the Art Center of the International School of Geneva. This event will be the fourth of its kind in our school community organised with the support of our PTA (Parent Teacher Association). It will highlight several choir performances from the primary and middle school and two short dance performances with students from the dance school. The performances will be followed by a Wine and Cheese apéro in the presence of experts in the field of Rare Diseases in the Foyer of the Art Center. It promises to be a warm, generous, informative and fun event for our community. This event is open to all.
A rare disease is defined as a condition that affects less than 1 in 2,000 people and requires special combined efforts to manage it. There are more than 7'000 listed diseases. Rare disease research is crucial to providing patients with the answers and solutions they need, whether it’s a treatment, cure or improved care. February 29th 2020, the thirteenth edition of Rare Disease Day, will see thousands of people from all over the world come together to advocate for more research on rare diseases.
Proceeds raised will go to the portal for Rare Diseases in the HUG, Orphanet. We are very fortunate to welcome the president of this association Loredana D’Amato Sizonenko at our event.
Stella Kariuki-Pieroth ([email protected])