Rare Disease - Twitterstorm
28 February 2019
Landsvägen 50A, Sundbyberg, Stockholm / online, Sweden / online
+4670 578 80 28
Hosted by Sällsynta diagnoser / Rare Diseases Sweden
Tell us about your life with a rare disease – we need your help!
Rare Diseases Sweden is starting a TWITTERSTORM
Join us on 28th of February 2019
“It took me more than 4 years to get my rare disease diagnose”
“You are getting tired of informing healthcare staff all the time about all your symptoms are connected”
Do you recognize yourself in the short citations above? Have you been in similar situations? If so, we need your help! Collect all examples of difficult (healthcare) situations related to living with a rare disease.
Twitter those examples on rare disease day 28th February 2019 at 11 a.m. and help us create a twitterstorm!
We want to increase awareness about living with a rare disease. With a broad understanding of the problematics, we can get better support to reach the required system change!
the #hashtagg for the Twitterstorm will be announced 27/02 2019 on Instagram, Twitter and FB.