Miracles of medicine - reality or fiction?
26 February 2020
Hosted by Slovak ALliance for rare diseases
Since RDD 2020 in Slovakia is on the same day, when elections are appointed we are mainly publishing different pieces of information about rare diseases, patients stories etc.... The main objective is to move the attention to innovations, we also use the #InovaciePreZdravie, #InnovationsForHealth
On Wednesday 26 of February, we join a political discussion – Miracles of medicine reality or fiction with other stakeholders from the industry, health care and ministries to speak about rare diseases, added value of rare disease research and importance of health and social care for everybody, in line with the position paper of Eurordis Achieving Holistic Person-Centred Care to Leave No One Behind. In the presentation, we will explain not only the legislative background of rare diseases resp orphan medicinal products but also the patients' view and the value of innovation for patients and their families as well as the whole society.