Carry Hope Run
29 February 2020 - 28 February 2021
Hosted by Rare Disorders Society (Signapore)
Hi everyone! My name is Hope, Rare Disorders Society Singapore (RDSS)newly appointed mascot for their upcoming run! I come from UK and I travel around the world, raising the awareness for a rare condition, Pompe Disease.
Carrying me (Hope) is akin to carrying many of our beneficiaries who may not be mobile, and are fighting on in their own journey as a rare disorder patient.
I too carry their hope and dreams, in wanting an even better life as they wait for any breakthrough in the medical treatments. For some beneficiaries, their hope is to be able to express their thoughts and feelings to their loved ones, in their own unique ways.
Every child, regardless of their different needs, has the rights to live and be given the fair opportunity to grow and develop their abilities. We are here to love and offer them the quality of life.