Description
On 28 February, the children of Cappabue National School in West Cork will be coming to school in their most rainbow-riffic striped outfits, to support Rare Disease Day 2022 and raise awareness and funds for Genetic Cures for Kids. This charitable foundation has been established to find the cure for SPG56, with the goal of saving the life of Tallulah Moon Whitrod, and other children like her, who are diagnosed with this currently un-curable disease.