The webconference “SCIENCE and ART together for rare diseases. Achievements, frontiers and artistic spaces” With the Proclamation of the winners of the XIV ed. of the competition “il Volo di Pegaso” is organized by the National Center for Rare Diseases of the Istituto Superiore di Sanità together with UNIAMO Federazione Italiana Malattie Rare FIMR Onlus.
The event will be held on Friday 25 February 2022 from 10.00 to 13.00.
Registration via Zoom: https://bit.ly/25-02-22
Streaming via Facebook: https://www.facebook.com/IlVoloDiPegaso
Official language: Italian (automatic translation in English will be provided by Facebook/Zoom).
The webconference, whose aim is promotes awareness on rare diseases through tools and initiatives of the Health Humanities, is part of the celebrations of the RDD, to which the National Center for Rare Diseases of the Istituto Superiore di Sanità adheres every year by organizing scientific and popular-science events including the final cerimony of the literary, artistic and musical competition “Il Volo di Pegaso” (The Flight of Pegasus) dedicated to rare diseases (twinned with “Uno Sguardo Raro – Rare Disease International Film Festival”). The competition is now in its fourteenth edition, this year the theme is: “The fairy tale as a place of all the hypotheses”.
The scientific session of the webconference will include presentations from leading speakers in the fields of Science and Art.
Aims of the event are to (i) foster knowledge and awareness on rare diseases, (ii) promote insigths on the connection of Art and Science and (iii) proclaim the winners of the XIV edition of the literary, artistic and musical competition “Il Volo di Pegaso”.
Health humanities can be defined as a common ground between arts and humanistic culture, health and social sciences, ideal mixture to support health care and well-being.
In this context, since 2008 the Laboratory of Health humanities of the National Centre for rare diseases of the Istituto Superiore di Sanità (ISS, the National Institute of Health in Italy) has been running many research, education and communication activities: from the elaboration of recommendations on the use of narrative medicine – clinical-care intervention methodology based on a specific communicative competence, which focuses on narration as a fundamental tool to acquire, understand and integrate the different points of view (patient, doctor, social-health worker, family member and caregiver) – to the evaluation of their use in the clinical-care, from international research projects such as SToRe: Story Telling on Record on the integration of the narratives of patients, family members and health professionals in the medical records, to frontal lessons and activities on Arts and Medicine for high school students during their school-work educational programs at the ISS and the literary, artistic and musical competition “Il Volo di Pegaso” (The Flight of Pegasus).