24 Feb 2021
Wed 24 February, 2021
Bd Lacul Tei 120
2020 events in Romania
Exhibition: Captive in
10 Dec 2019 - 29 Feb 2020 Timisoara
As part of the project
07 Feb 2020 Cluj- Napoca
Life with Gaucher disease/
09 Feb 2020 - 29 Feb 2020
The event will bring together
14 Feb 2020 Zalau
There are approximately
26 Feb 2020 Bucharest
The conference "Rare Disease
28 Feb 2020 Sibiu
"Little Sundrop and the
29 Feb 2020 - 14 Mar 2020 Braila, Bucharest
Ziua Internaţională a Bolilor
29 Feb 2020 Bucharest
15.02.2021 - Launching
15 Feb 2021 Online
We have organized in partnership
21 Feb 2021 Zalau
Gaucher disease is a little
22 Feb 2021 - 28 Feb 2021
Rare diseases are characterized
24 Feb 2021 Bucharest
The workshop on the Rare
25 Feb 2021 online
The press conference -
26 Feb 2021 Online
On 26.02.2021, the Medical
26 Feb 2021 - 27 Feb 2021 Timisoara
2 medical universities
28 Feb 2021 Zalau
The National Conference
28 Feb 2021 Online

Together for patients with rare diseases 24 February 2021 Bd Lacul Tei 120, Bucharest, Romania
Hosted by INSMC Alessandrescu-Rusescu

Rare diseases are characterized by a large number of broad and diverse disorders and symptoms, majority having identified genetic origin. Frequently the patients with rare disorders have been on a diagnostic odyssey going from one specialist to another to find an answer. As rare as rare diseases are, it’s even rarer to find a doctor who is willing to invest the energy needed to investigate, research and care for rare disease patients.

In honor of Rare Disease Day, which raises awareness of rare diseases and their impact on patients and families, a Romanian multidisciplinary team wish to organize on February 24th a virtual scientific symposium named “Together for patients with rare diseases” to revisit clinical cases and to try putting genetic puzzle pieces together and to share their experiences with other specialists.

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