26 Feb 2020
Wed 26 February, 2020
Bd Lacul Tei 120
2020 events in Romania
Exhibition: Captive in
10 Dec 2019 - 29 Feb 2020 Timisoara
As part of the project
07 Feb 2020 Cluj- Napoca
Life with Gaucher disease/
09 Feb 2020 - 29 Feb 2020
The event will bring together
14 Feb 2020 Zalau
We will organize a round
26 Feb 2020 Zalau
There are approximately
26 Feb 2020 Bucharest
A very special event will
28 Feb 2020 Zalau
The conference "Rare Disease
28 Feb 2020 Sibiu
A national conference on
29 Feb 2020 Zalau
"Little Sundrop and the
29 Feb 2020 - 14 Mar 2020 Braila, Bucharest
Ziua Internaţională a Bolilor
29 Feb 2020 Bucharest
Launch of Rare Disease
15 Feb 2021 Online
Gaucher disease is a little
22 Feb 2021 - 28 Feb 2021
Rare diseases are characterized
24 Feb 2021 Bucharest
Press conference: Equitable
26 Feb 2021 Online
On 26.02.2021, the Medical
26 Feb 2021 - 27 Feb 2021 Timisoara
National Conference Rare
28 Feb 2021 Online

challenges and opportunities in the diagnosis and treatment of rare disorders for children 26 February 2020 Bd Lacul Tei 120, Bucharest, Romania
Hosted by INSMC Alessandrescu-Rusescu

There are approximately 7,000 rare diseases, usually with a genetic basis, often affecting patients early in childhood, and are frequently progressive, disabling and life threatening in nature with psychological impact on families of children suffering from these diseases and with huge societal impact.

Nowadays patients, families and physicians have still limited awareness about rare disorders and the diagnosis is delayed and often with severe consequences for patients.

We try to support the efforts of the clinical community helping to raise awareness of rare diseases, including the diagnosis challenges, for different specialists involved in pediatric medicine.

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