RDD National conference "Reframe Rare Disease Day"
29 February 2020
Avram Iancu, nr.29, etaj 3, Zalau, Romania
Hosted by Romanian National Alliance for Rare Diseases
A national conference on rare diseases will be organized in Bucharest for more than 100 participants from all stakeholders: patients, professionals, industry and authorities. Personal stories will be shared, a state of the art of rare diseases in Romania will be presented and an active debate about the development of Centers of Expertise, ERNs and their integration into the national health care system will be organized.