Description
In conjunction with World Rare Disease Day 2022 (28 Feb 2022), Malaysia Lysosomal Diseases Association (MLDA) will be organising our pioneer Ride with Hope in Rembau together with the Malaysian Rare Disorders Society (MRDS), Persatuan Sindrom Prader-Willi Malaysia (PWS) and Persatuan Berbasikal Negeri Sembilan. The aim of the event is to create the needed awareness pertaining rare diseases (RD) in Malaysia. The total proceed raised will be contributed towards supporting RD patients in Malaysia as we strive to assist the RD community and patients in improving their quality of life.
Bkt Miku, Rembau, best known as one of the steepest hills in Malaysia has been selected as the event location. It will not only test the endurance level of both new and seasoned riders but also challenge participants’ resolve and resilience. By participating, we hope that with each pedal stroke, the experience will help create awareness and act as a reminder of our RD individuals and their families as they continue to fight the good fight each day for equal rights and a life with dignity and wellbeing.
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