Description
Join the first inclusive virtual Rare Diseases Run 2022! The event, initiated by the German patient organization SYNGAP Elternhilfe e.V., will be a perfect opportunity to combine raising awareness for your rare disease, taking part in a global sports event and supporting 10 rare disease patient organizations at once. To realize this vision our patient organization partnered with „Laufen macht glücklich GbR“ (which means „Running makes happy“), who is experienced in virtual running adventures. Everyone can participate by foot or in a wheelchair, wherever you are and no matter if you are a pro or not. There are distances for all kinds of participants.
For EU and Switzerland participants there are different 3 packages available with everything it needs to have a great running experience as a start number, a medal a certificate and a cool themed running shirt (Standard and Premium). Participants outside EU can book the online package.
Everyone can take part and represent his/her rare disease and also run in a virtual team for his/her organization. Just enter it in the field Verein (Club).
Let’s have a great event!
Together we are MANY, STRONG and PROUD.
#syngap1 #syngap #raredisease #angelman #cdkl5 #cfcs #erythropoieticProtoporphyria #whensunhurts #LCHAD #smithmagenissyndrome #KCNQ2 #noonansyndrome
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