Rare disease spotlight: Diagnosis, treatment and management of aHUS (Zoom Event / Facebook Live)

Description

aHUS (atypical hemolytic uremic syndrome) is a rare disease that causes too many blood clots to form in your blood vessels. Because these blood clots block regular blood flow to your kidneys, your kidneys are not able to get rid of waste in your body as well as they should. Over time, your kidneys become damaged, which can lead to kidney failure.

On Rare Disease Day 2022, the American Kidney Fund is bringing together nephrologist, Bradley Dixon, MD, FASN, and patient advocate, Jeff Schmidt, for a discussion on aHUS. Join the conversation to:

– Learn more about aHUS, how it is diagnosed, and treatment options
– Meet an inspiring patient advocate and hear his journey as a parent of a child with aHUS
– Find out what to ask your health care team

Speaker Bios
Bradley Dixon, MD, FASN
Dr. Dixon is currently an Associate Professor of Pediatrics and Medicine at the University of Colorado School of Medicine and Children’s Hospital Colorado. Dr. Dixon’s clinical interests focus on complement-mediated renal diseases such as atypical hemolytic uremic syndrome and C3 glomerulopathy (C3G). Dr. Dixon is also an investigator in several clinical trials of complement-targeted therapies in these diseases.

Jeff Schmidt
Jeff is a member of the aHUS Alliance, a global organization that supports those affected by aHUS around the world. He has a daughter whose aHUS triggered in 2011. In 2014, he became passionate about helping the global aHUS community after learning about a teenager in Australia and a family in Canada who were trying to gain access to immunosuppressive drugs. This led to him joining the aHUS Alliance in 2015. One of Jeff’s roles in the aHUS Alliance is to find families affected by aHUS in countries that do not have an aHUS association or support group. He helps connect them with others affected by aHUS in their country through social media.

Support for this educational program is provided in part by Alexion.